Good palliative care resources for patients and carers

These are so good that I think they should be shared more widely. As they say on the TV, this is in no particular order.

Nutrition:

It should always be Food First – rather than just thinking about supplements.

Helpful patient leaflets are at: http://www.bapen.org.uk/nutrition-support/treating-malnutrition/food-first-project

And there is specific advice for carers of people with dementia at. There’s also some medical bits included here – but the practical advice is just that:

http://www.dementia.jennerhealthcentre.co.uk/documents/Swallowing%20guide%20for%20relatives%20carers.pdf

Hydration:

There continues to be understandable concern about dying patients left without access to water. A helpful leaflet from St Christophers hospice for carers and some patients makes it clear that it is often the illness which is making the body systems fail, not a lack of fluid. http://www.stchristophers.org.uk/leaflets/fluids

Imaginative advice for carers about mouth care is at: http://www.hospice.org.nz/cms_show_download.php?id=796

Breathlessness: 

Patients may appreciate the leaflets at: http://www.stchristophers.org.uk/leaflets/breathlessness or http://www.copdfoundation.org/What-is-COPD/Living-with-COPD/Breathing-Techniques.aspx

This is a bit more medical: http://cks.nice.org.uk/palliative-care-dyspnoea#!scenario:1 . But the section about ‘simple measures’ is useful.

COPD:

For patients with COPD, there’s a great 26 min video about Advanced Care Planning at:

http://www.agooddeath.co.nz

Cardiopulmonary Resuscitation:

These Welsh videos were designed to help doctors and nurses talk to patients, but were also made to be seen by patients. See:

https://www.youtube.com/watch?v=Y52YwLcVQQs&index=3&list=PLzViUx1Kacvxj3XthM2S3VJLWbjr8uCRZ and

https://www.youtube.com/watch?list=PLzViUx1Kacvxj3XthM2S3VJLWbjr8uCRZ&v=qAqQAo0unYU

If you have suggestions about other good resources, please let me know!

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