These are so good that I think they should be shared more widely. As they say on the TV, this is in no particular order.
It should always be Food First – rather than just thinking about supplements.
Helpful patient leaflets are at: http://www.bapen.org.uk/nutrition-support/treating-malnutrition/food-first-project
And there is specific advice for carers of people with dementia at. There’s also some medical bits included here – but the practical advice is just that:
There continues to be understandable concern about dying patients left without access to water. A helpful leaflet from St Christophers hospice for carers and some patients makes it clear that it is often the illness which is making the body systems fail, not a lack of fluid. http://www.stchristophers.org.uk/leaflets/fluids
Imaginative advice for carers about mouth care is at: http://www.hospice.org.nz/cms_show_download.php?id=796
Patients may appreciate the leaflets at: http://www.stchristophers.org.uk/leaflets/breathlessness or http://www.copdfoundation.org/What-is-COPD/Living-with-COPD/Breathing-Techniques.aspx
This is a bit more medical: http://cks.nice.org.uk/palliative-care-dyspnoea#!scenario:1 . But the section about ‘simple measures’ is useful.
For patients with COPD, there’s a great 26 min video about Advanced Care Planning at:
These Welsh videos were designed to help doctors and nurses talk to patients, but were also made to be seen by patients. See:
If you have suggestions about other good resources, please let me know!